16 days ago humanity lost a great person....
I first "met" Jamie over 10 years in an on-line group for women with EB. We communicated on and off thru the years; ran an on-line EB support group together for a while and even met in person a few times. Jamie and I were born just 2 weeks apart; were married on the same day (6 years apart) and we both had EB. Jamie had a more severe form though; a form that took the life of her older brother when he was just 19.
Jamie was so much more than someone with EB. She was a daughter, a sister, an aunt, a friend, a wife, a painter, a singer and the list goes on.
I knew Jamie had been battling a form of cancer, that is common in her form of EB, for many years. I also knew when she decided that quality of life was more important that quantity of life. Jamie passed away on July 10 surrounded by her loving husband and family by her side. She fought a brave and inspirational battle up until the very end.
Since her death, her wonderful Husband Taylor has used his incredible loss to share Jamie's life with the entire world . It is a love story like no other! I have learned so many things about Jamie over these past two week; I have laughed and I have cried. I am so blessed to have known her and to call her my friend.
I encourage all of you to take the time to sit and read her extraordinary obituary here. Then head on over and read the love story of Jamie and Taylor. I PROMISE YOU, it will be worth your time and your tears :-)
Rest in Peace my friend....you have earned it.