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Sunday, March 17, 2013

Tid Bits

Some friends started doing blog posts almost daily about random things that happened during their day.  At the risk of being a copier, i thought i'd give it a try but I am not sure I will have time to do daily "Tid Bits" but here goes!

Summer and Joey spent a lot of time playing outside today.

The girls fought and whined A LOT:( 

Joey can turn the bathroom sink on and off by himself:)  He has flooded the bathroom twice this week so far:( 

We are pretty sure Joey is going to be left handed!

Joey will be having dental surgery on Wednesday.  The plan is NOT to be an inpatient but it will depend on how he does during and after surgery with his breathing. 

School picture day is on Tuesday and the girls are excited. 

Its been a rough week in the EB community.  Two brothers from England died 2 days apart from complications from the pneumonia:(  They were almost 4 and almost 2 and had JEB-H.  You can watch a sweet video of them here

Baby Easton is almost 7 months old and is battling bacterial and viral pneumonia too.   His family and the doctors are very worried about him.  If you are on Facebook you can find his support page here

There also a new EB baby here in Florida!  I waiting to get more info on her but she was just born last week.

I will post after Joey's surgery on Wednesday and let you know how it went. 

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