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Friday, March 22, 2013

Joey's Surgery

Sorry I haven't had time to update.  His surgery went well.  They did NOT need to intubate him after all:) IV sedation was enough and then he pulled his own IV out when they were done:/  We were home by noon!  They dentist had to remove 6 teeth and cleaned the rest.  He doesn't seem to be in too much pain and is eating some but still doesn't like to drink much of anything.  Thank goodness for his g-tube!  Thanks for all your prayer and happy thoughts! 

Tuesday, March 19, 2013

Tid Bits from Today

Joey woke up at 8am very grumpy:(

He and I went to to dollar store to pick out something small to contribute to Gracie's East Egg Hunt in Pre-K tomorrow. 

Joey was very naughty today and had FOUR time-outs in his bed:(  I hope this doesn't continue. 

I did 4 loads of laundry and I am still not done:/

Everything is all packed for Joey's surgery tomorrow: a normal diaper bag, a g-tube supply bag and a wound care supply bag.  You'd think we were going on vacation!  

We had sweet and sour chicken w/ rice and corn for dinner

The girls went to bed late but that happens sometimes especially with the time change. 

It was so warm by mid afternoon (89 degrees) I had to turn the A/C on:(  I don't like having to turn the A/C in March.  But my friends up north keep getting snow, so we'll keep the hot weather even in March:)

I hope to get some sleep tonight.  We have to leave by 5:30am:(

I will update on some point tomorrow after his surgery.  Hopefully it goes well and he can go home the same day!  






Sunday, March 17, 2013

Tid Bits

Some friends started doing blog posts almost daily about random things that happened during their day.  At the risk of being a copier, i thought i'd give it a try but I am not sure I will have time to do daily "Tid Bits" but here goes!


Summer and Joey spent a lot of time playing outside today.

The girls fought and whined A LOT:( 

Joey can turn the bathroom sink on and off by himself:)  He has flooded the bathroom twice this week so far:( 

We are pretty sure Joey is going to be left handed!

Joey will be having dental surgery on Wednesday.  The plan is NOT to be an inpatient but it will depend on how he does during and after surgery with his breathing. 

School picture day is on Tuesday and the girls are excited. 

Its been a rough week in the EB community.  Two brothers from England died 2 days apart from complications from the pneumonia:(  They were almost 4 and almost 2 and had JEB-H.  You can watch a sweet video of them here

Baby Easton is almost 7 months old and is battling bacterial and viral pneumonia too.   His family and the doctors are very worried about him.  If you are on Facebook you can find his support page here

There also a new EB baby here in Florida!  I waiting to get more info on her but she was just born last week.

I will post after Joey's surgery on Wednesday and let you know how it went. 

Sunday, March 10, 2013

Birthday Weekend

 Since Summer and Joey 's birthdays are one day apart we had another joint birthday party this year!  We will probably do it that way every year until Summer starts to complain:) 











We rented a bounce house this year!



Joey LOVES to bounce!




Cake time:)




He was posing for this pictures while eating his cupcake!


Present time...the best part per Summer!











Can you believe she is 7 already???



And he is TWO????



(yes I think they looks alike too!)

Friday, March 8, 2013

Happy Birthday Joey!

Today Joey turns 2 years old!

Here he is when he was just 1 day old




And here he is today!


Fun Facts about Joey:

Weight: 25 pounds
Height: 35-36"

Favorite TV Characters: Elmo, SpongeBob, Mickey Mouse

Favorite Foods: Cheese, yogurt, chips

Favorite Sister: Summer (don't tell the others)

Joey loves to play outside, swing, color, and make lots and lots of messes!  He loves to take a bath and play with bubbles.  He hates to wear socks and takes his blankie everywhere he goes!  He has blonde hair and blue/green/brownish eyes (they seems to change throughout the day!)  He can say over 100 words and can walk up and down steps without help.

For those new to my blog; you can read about his 1st Birthday here ; and his birthday story here

His party is tomorrow and I will post pictures of that hopefully on Sunday!



Thursday, March 7, 2013

Happy Birthday Summer!

7 years ago tonight our Summer Noel was born!



Some Fun Facts about Summer:

Favorite Vegetable: Broccoli

Favorite Color: Blue

Favorite Subject in School: Recess

Favorite TV Show: Monster High

Height: 49 3/4 inches

Best Friend: McKenna

Summer is doing very well in 1st grade this year and she is reading at an almost 3rd grade level!  She likes school but does not like homework.  She loves to read but hates book reports!  She likes to ride ride her bike and play with Joey.  She and Joey will have a joint party on Saturday!