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Monday, December 16, 2013

Happy Birthday Garrett!!!

On December 6th Garrett turned 9 years old in Heaven.  Even 9 years later, is still feels like that moment in my life was a dream.  

We followed our normal traditions that days.  Spaghetti for dinner and cheesecake for dessert.  Each one of the kids got to open a small gift and we attempted to build a Gingerbread Village again this year.  It was a bit harder this year- each kid had their own building but it only comes with one set of frosting and candies to decorate with and no one was in the sharing mood and Joey just wanted to eat the candies:) 

Sami still understands WHY we choose to celebrate his birthday each and not forget but the middle two have a hard time understand the why part and would have rather played with their friends instead of spending time as a family.  I suppose that is normal for situations like ours but it is very hard on me each year when we spend more time arguing about the why part than we do remembering.  

Here are a few pictures from that day. 

Sami's House

Summer's House

 Gracie's House

Joey's House (he wasn't too interested)

The Cheesecake:-)

A special touch to Garrett's tree

Sunday, December 1, 2013

Garrett's Tree

On Garrett's first birthday instead of planning a birthday party like I should have been, I decorated a small Christmas tree with "Garrett" themed ornaments- cowboy items, butterflies and angels.  Every year since then, I would buy an ornament to add onto my collection for his tree.  And every year around his birthday I would get out and decorate his tree. 

For the past two years I never actually put away his tree!  It stayed up, decorated in our bedroom.  I wanted to enjoy it year round not just for 4-5 weeks out of the year.  This year I decided to do something a little different.  Many of his ornaments are breakable and since we have a toddler and cats, if I want those ornaments to stay in one piece, they remain in the box until the year when its 'safe' to hang them again. 

In the past I had done blue lights on the tree but this years I wanted to do something different.  Today I got strands of clear lights and a strand of red lights plus some shatter proof green, red and white ornaments.  After work I cleaned up the tree a bit, hung the lights, new ornaments and some of the non-breakable ones from the past and decorated Garrett's tree.  His birthday is on Friday December 6th and he will be turning 9 years old in Heaven this year.  For those new to my blog, we celebrate his birthday the same way each year and this year will be no different!  I will blog sometime over the weekend, with pictures included so you can see how we celebrated!  If you have not read Garrett's story yet, you can find it here!

Monday, October 28, 2013

EB Awareness Week 2013

It's that time of year everyone!  It's EB Awareness Week!  October 25-31st each year is dedicated to spreading awareness about EB.  Check out the posts I have written so far this week over on Garrett's House

Friday, October 25, 2013

Fall 2013

Its been awhile since I have blogged.  The feedback from my last few in-depth blogs has proven I just need to stick with what happens in our lives and skip my feelings on it all.  I know its my blog and I can write what I want but when I do, drama seems to increase in my life and I defiantly already have enough of that in my life! 

The kids are doing the same.  Just finishing up the first 9-weeks of school! And they are excited for Halloween!
We (or should I say Joe) carved pumpkins over the past 4 days! And tonight was a Halloween event at the elementary school! And now they are on a 4-day fall break. 

Here are some pictures of the pumpkins! 

Sunday, September 29, 2013

feeling lost...

Back story:

When I was younger- elementary and early middle school age- I didn't have many friends. I had a couple of close ones but that was it. Then when I got to high school I was suddenly apart of this group of friends! I was by no means popular but I enjoyed being apart of 'the group'. Being as naive as I was back then I honestly thought we would be friends forever.  I believe that no matter the amount of time, distance, husbands and children later we would remain friends. But sadly because of those very reason my hope couldn't be further from the truth. 

Shortly after I got married we moved 1200 miles from the only placed I called home. I left behind my family, the best job I will ever have and most important to me at the time, my friends.  I really didn't think we would last 4 months here...that was 12 1/2 years ago. My friends really got me thru those hard times in the beginning. I looked forward to the visits home so I could see them again.  I didn't get home as much as I would have liked but I tried to keep in touch thru emails, blogs, the occasional phone call and eventually mostly thru social media. I continued to hope that the distance wouldn't matter.

Apparently something went wrong along the way....

Present day:

This month has been a rough one for our family.  It started the end of last month with Sami getting attacked by a dog the day after she turned 11. She has since healed physically, and she is getting there emotionally. Exactly a week later my father-in-law had a bad reaction to a wasp sting and ended up on life support.  Sadly he did not survive and passed away on September 9th.
6 days later my grandmother passed away as well.  Her death I knew was coming but it certainly didn't make it any easier. Over the course of a two weeks I watched how the death of a family member can bring family and friends closer together and also how it can tear them apart.  I saw people regretting not reaching out to these people before it was too late and now they have to learn to live with that guilt the rest of their lives.  Plus these events were just another reminder that life is short and tomorrow is not promised. 

Because of recent events I felt the strong need to go back to my home state of MI to be with my family.  It had been a while since I had been back and I know it would likely be a while before I/we would be back again.  Even though the visit would be short, I really wanted to see as many family and friends as I could; just in case this was the last time for whatever reason. 

Even though I was able to see a lot of family again, (which was AWESOME!!) the friends where far and few between. And to be 100% honest I came home with a very broken heart.  

So much had changed in my home town even since I had been there last. It wasn't the same anymore. While I didn't expect people to drop everything for me I couldn't help the overwhelming feeling that I lost more than just my grandmother and father-in-law this month.  

The day I came back from MI a friend posted the following on Facebook:

"I think the only reason people hold onto memories so tight is because memories are the things that don't change; when everybody else does."

It couldn't have been a more perfect quote to explain how I was feeling.  I have so many good memories of the great times with my friends.  I often forget those are memories are from the past, not the present.  I would like nothing more to make new memories with my friends; sadly I don't see that happening.  I am often told, 'just move back to MI to be closer to everyone!'  Even if it was as easy as it sounds; I am not sure anything would change.  The two friends who did make time in their busy lives to see me on Sunday both said I do a better job at keeping in touch with them then all the local friends do.  And that just broke my heart.  I do have some wonderful friends here in Florida, but none are as close as those I have/had in MI.  I'd give just about anything to have friends close by to see often.  So when I go home I try to see any many friends as possible; who knows when the next time I will get back and who knows what tomorrow will bring.

I wish I had done a better job at keeping my friends; maybe I wouldn't have left so sad.  But I can't change the past and can only try to do better in the future!  

So the moral of the story...don't be like me:)   


Friday, August 23, 2013


I always enjoyed turning one year old until the year I turned 20 then I didn't like it anymore.  Not sure what is was about '20'.  Maybe because I wasn't a teenager anymore; maybe because I always imagined I'd be married by 21 and I wasn't even dating anyone at the time. Maybe it was because my best friend had just gotten married and moved half way around the world. Whatever the reason I just wanted to skip that birthday. So another friend and I went on vacation to San Diego over my birthday!!! It was an awesome vacation; one of the best I have been on!

My 21st birthday was the best ever ( who's isn't???) :-)

And after that the birthday's seem to come quicker every year; some where better than others.  I had my first child two weeks after my 25th birthday, I went thru hurricane Charley on my 27th birthday. Spent my 32nd birthday in the hospital! 

Once I hit 34 i was not looking forward to turning 35.  I grumbled about it a little bit and more than one person told me I should be grateful to be 35 because they knew somebody would would never turn 35 because they were taken from this world too soon.  And I *knew* i was lucky but I think that is something that doesn't sink in until you personally know someone in that situation.  

Last week Tuesday I celebrated my 36th birthday. Instead of looking at it as turning one year older, I chose to look at it as another year of winning the fight against EB and what ever auto-immune disorder I may have; another year to celebrate being married to my husband; another year to see my kids grow up!

Its been a sad year for my high school classmates.  One classmate died of cancer at the age of 35; leaving behind a husband and two young children.  Then last month the husband of another classmate died suddenly in a tragic accident at the age of 34 also leaving behind his wife and two young children.  I know they both would been thankful to turn 36.  

Then next week Tuesday my friend Jamie will be celebrating her 36th birthday as well. She too has fought EB for 36 years as well as cancer for the past few years. Sadly the cancer is wining and the harsh reality is that this will likely be her last birthday here on this Earth.  There are no words on how incredibly sad that makes me:-(  I hope that is not the case and she has many more birthday because I don't think her work here on Earth is done yet :-)

So I challenge everyone to find the positive things about getting a year older this year!

Sunday, August 4, 2013

Update on Sami

Its been a little over a week since Sami had her back surgery.  I am happy to report she is doing great!!  She is back to her normal self.

Her wounds are healing nicely and has less and less pain each day.

She starts swimming lessons tomorrow and school starts in two weeks!! She is looking forward to getting her class schedule and meeting her teachers.

Thanks again for all your prayers and positive thoughts for her!

Wednesday, July 31, 2013

Ankle wound-4 weeks

I started my treatment on my ankle ulcer 4 weeks ago. The center is looking better but the out part is infected again:( waiting on the results from the culture he took yesterday.

The first picture is from 2 weeks ago the second is from last night.

Tuesday, July 16, 2013

Ankle wound- culture results

***warning this post contains a graphic wound picture.

I went back to the doctor yesterday for the results of the skin cultures. I am growing not one or two or even three but FOUR different bacteria on my wound:(

Staph, Pseudomonas, a rare bacteria called Serratia marcescens and a rare strain of strep called Beta hemolytic strep.

Luckily there is one oral antibiotics all four are sensitive too! And its the one I am already on. So that is good. But because it's four bacteria I am still at high risk for it spreading to my leg bone:( so I need to be on antibiotics long term- at least another 6 weeks possibly longer.

The ointment I have been using is working so I will to continue using that. I just need to soak and 'scrub' it more each day and stay off my feet as much as possible which is very very hard.

Here is a picture of how it looks now:

Friday, July 12, 2013

Ankle wound- Day 4

WARNING: this post contains graphic pictures of wounds!!

I have used the enzyme ointment- Santyl- for 4 days now ( along with oral antibiotics) and the ulcer is looking a lot better!

The top picture was before I started treatment and the bottom picture is from today.

Monday, July 8, 2013

Ankle Wound

I am going to post about something I don't know share so publicly, a wound I currently have!

I have had this wound on my left ankle for almost 2 months now and no matter what I have used, done or tried it will not heal:-(  I went to my own doctors about a month ago who just gave me an antibiotic and sent me on my way.  It didn't help at all. With the help of other EB parents and two friends who are wound care nurses by profession I tried to heal the wound by myself with products samples they sent or suggested.  But nothing I was doing was really making a difference.  My doctor "didn't want to deal with it anymore" (I will be finding a new primary care doctor) and a dermatologist I had seen in the past "doesn't do chronic wound care" :-(  So since the wound is on my foot I contacted a local podiatrist and he happily agreed to see me!

My appointment was today.

Diagnoses: Venous Ulcer.  Per WebMd this is a little bit about a venous ulcer:

What is a venous skin ulcer?
A skin ulcer is a type of wound that develops on the skin. A venous skin ulcer is a shallow wound that occurs when the leg veins don't return blood back toward the heart the way they should. This is called venous insufficiency.

Venous skin ulcers are slow to heal and often come back if you don't take steps to prevent them.
A venous skin ulcer is also called a stasis leg ulcer.

What causes venous skin ulcers?

Venous skin ulcers are caused by poor blood circulation from the legs, such as from venous insufficiency. Your veins have one-way valves that keep blood flowing toward the heart. In venous insufficiency, the valves are damaged, and blood backs up and pools in the vein. The blood may leak out of the vein and into the surrounding tissue. This can lead to a breakdown of the tissue and an ulcer. 

Veins that become blocked also may cause blood to pool, leading to these ulcers.

The Bad News: the wound is infected:(  its a minor cellulitis infection.  So now I am on Cipro until the skin cultures comes back and then I may need another or additional antibiotics.  

The Good News: the infection is NOT to the bone!!!!

The ulcer is also not THAT bad when it comes to ulcers.  I do not need surgery to have it cleaned out.  He prescribed an topical enzyme to clean the wound bed of the dead skin and allow it to start heal.  It is called Collagenase Santyl Ointment.  

It is VERY expensive ointment and unfortunately my insurance doesn't cover it:(  Thankfully the company that makes it has a cost share program so it only cost me $50 a tube vs the retail price of $223:-(  $50 is still a lot of money to us but its a lot better than $233!  Hopefully I will only need 1 or 2 tubes.

I have to use it for about 3-4 weeks until all the dead skin cells are removed.  its a VERY slow process.  After that then we will discuss a plan to help the wound heal.

My ulcer is NOT EB related.  While poor circulation is common in some forms of EB mine is from have vein problems since I was 18.  I started getting varicose veins in high school and compression stockings gave me hives so another alternative was to have my veins stripped.  It was something commonly done then. Little did I know the problems it would cause later on in life.  I have frequent swelling in my left leg than has never been explained.  Apparently its the cause of my ulcer.  

Since its not EB related he is treating me as if I did not have EB.  I have no idea if this ointment would work for others with EB wounds similar to ulcers but I will keep everyone updated on my progress!  

The wound is 1.8mm in diameter and about 1mm deep.  The dark red spot on the top left is an exposed vein.  It is VERY painful a lot of the time.  Most pain medication doesn't even touch the pain:(  I RARELY cry from pain...but this is unbearable at times.  It's even worse than giving birth!  The doctors gave me a mild pain med and if it is still very painful next week will add a pain to nerve pain as well.  

Working and taking care of the kids and house work is getting very difficult due to the pain and swelling. Its hard to walk a lot of the time.  I really hope it starts to heal soon.  I know one wound is nothing compared to many others with EB but this is the worst wound I can ever recall having and being on constant pain is really starting to take a toll.  I will keep you updated!  

For those that want to see it I will share a pic.


Tuesday, June 25, 2013

Off to middle school she goes!

Sami's last week of elementary school was a busy one! 

She had a great year this year and was involved in many activities. She was in the school chorus, art club, safety patrol, helped out one day a week in the Pre-K classroom. 

She also completed her 5th year in girl scouts and she also made honor roll again!

The day before the last day of school was the 5th awards assemble.  In all she earned 10 awards/certificate of completion/participation!  Here she is as a 5th grade graudate!

The last day of school was the 5th grade dance.  Think prom 5th grade style.  The theme was Red Carpet.  It turned out nice.

Here is Sami in her dress for the dance. She wasn't happy I took the picture :-)

The entire 5th grade voted on class superlative awards.  Check out what her classmates voted her as:)

She had an awesome year and is excited to be going into middle school in the fall. 

Monday, June 24, 2013

Playing catch up

Since I got a new phone I don't use a desktop computer very often. I am able to blog from my phone but it takes longer to type. So much has happened since my last blog post. Today started the 3rd week of summer vacation. Sami is attending daily drama camp thru the Boy's and Girl's club.  She is gone ALL day long.  There is a lot less drama at home when she is at camp:) but the other three keep me plenty busy!!

Joey is very active.  He likes to play cars, kick the ball, swim with the girls, eat Popsicles and ice cream.  He knows many of his colors and can say over 100 words. 

Summer is 7 going on 17 complete with the attitude to boot.

Grace is excited for kindergarten but misses her friends from preschool. 

My have had more issues with my EB in the past month than I have had in about 20 years. I hope this isn't the start of a downward spiral for me.  Its getting harder of doing my normal day to day stuff not to mention my other job!

I hope to do a few more posts for each girl about their last week of school In the coming days. In case I forget to mention it Sami is having her spinal rods lengthened on July 26.

Here are a few recent pictures. None of sami but I am saving those I have for my blog post on her:-)

Thursday, May 23, 2013

Class of 2020

We have been busy with end of year stuff at school.  Only 2 more week until summer vacation.  All three have had lots of special events at school so far this month and we have even more over the next two weeks.   I need to take Sami dress shopping for not one but two new dresses- one for the awards ceremony and the other for the 5th grade dance (a 5th grade version of the prom)

Grace's pre-k graduation is next week and the school talent show too.

This week Sami went to visit the middle school and we went back that evening for parent orientation.  A lot of things to figure out with Sami's health issues and the 82-yr old two story school.  It is going to be a big adjustment for her.  And while we were at the meeting we learned something I wasn't expecting...we are now the parents of a member of the class of 2020!?!?!?

I will leave you with some random picture while you ponder how that is even possible:)


Tuesday, April 30, 2013

The good that CAN come from technology...

Growing up there was no internet, or Facebook.  I knew there were other people with EB but I never "found" them until I got on the internet when I got to collage (age 19) and never meet anyone in real life until I was 21.  But thanks to the internet Sami didn't have to wait that long to find others like her:)  She knows or knows of many kids and adults who also have EB and has meet many of them in person. She knows that EB varies in severity among everyone and knows that some of her friends have a more severe form that she does.

A few weeks ago she got an assignment at school to write a 3-5 minutes speech about a person (living or dead) that had to over come some type of adversity.  Most of her classmates did it on someone who is no longer living.  She wanted to write it on someone living but had no idea who to pick.  I thought she should write about herself; after all she has overcome a lot of adversity in her short life.  But it couldn't be about herself.  So I began to think and I know a lot of people with EB who have overcome adversity in their life.  But one in particular stuck out Jamie Hartley because she and Sami have a lot of common interests.  Jamie is a singer and artist.  Sami loves to sing and draw/paint.  So we came up with a bunch of questions and I emailed Jamie asking if she would be willing to help Sami out.  Being the wonderful person she is Jamie was honored to help Sami with her speech.  Jamie got back to us within a few days and I read over her answers.  At that point the mom in me step in and edited a few things out.  Sami didn't know those with EB could get skin cancer; she is only 10 and I didn't think she was old enough to understand.  As some of you know Jamie is battle skin cancer, a battle that isn't going well.  I opted to remove part of Jamie's answer that mention cancer.  However I was very tired when I did it and apparently missed ONE line about cancer.   The next day Sami freaked out about the cancer part when she read thru the answers.  She thought it meant she would get skin cancer too.  But after much reassurance that the type she has does NOT increase her risk of skin cancer she calmed down....for about a minute... then she remembered some of her friends of EB have the same form as Jamie and wanted to know if they will get skin cancer someday.  How does a parent answer that question?  We told her there was no way to know and that not everyone with RDEB get skin cancer but many do.  Technology can be a blessing and a curse.  It can bring people together much quicker than without it but with the good is also bring the not so good. 

I was worried Sami wouldn't want to continue to write her speech on Jamie but she did.  So after many day and many rough drafts her speech was done.  It was due yesterday and when the teacher asked who wanted to go first, no one raised their hands.  But then Sami (who is VERY shy) offered to go FIRST!  So she stood up in front of her classmates and gave her speech and once she was done speaking, every single classmate asked 2-3 questions about EB!!! Because of her speech 22 more people know about EB:)  Her teacher said it went very well and Sami did a great job.  We are VERY proud of her.  

I wanted to share the speech with you all as well.  


Think  about  your  hands;  we  use  them  for  many  things  like  holding  a  pencil  to  write, or  using  a  fork  to  eat.  But for Jamie she no longer has hands like you and I do.  She suffers from a rare skin condition called EB.  Her form of EB is very severe and it has caused her fingers to fuse, or stick together and curl into a little ball making her hands look little fists.  But the loss her hands didn`t stop her from doing the things she likes to do.  Her dream since she was a little girl was to learn how to paint.  So a friend of her came over to her house and taught her how to paint.  It was difficult at first because she doesn’t have finger to hold the paint brush like you and I do.  But soon she learned creative ways to hold the paint brush.  Most days she paints hold the paint brush with her hands, elbows, her chin, nose, and sometimes even her head! 

 After much practice and many pictures she stared painting pictures for family and friends.  Then once she got really good at painting she began to sell her paintings online.  She paints all sorts of things but her most favorite thing to paint is birds.
 In addition to painting Jamie is also a beautiful singer and a talented songwriter.  Since she began singing when she was just 14 years old, she has recorded two different CD’s.  One is of Christmas Songs and she likes to sing O’ Holy night, and the other CD is of religious songs.  In the past 20 years she has traveled to over a dozen states including:  Florida, New York, Pennsylvania, Utah, Ohio, Tennessee, Missouri, Arizona, Texas, Colorado, Nevada and California to perform her beautiful songs for other people.  She has even traveled all the way over the Atlantic Ocean to the country of Belgium to sing at a fundraiser to help a child who has EB just like her. 
 Finally, Jamie also has an great interest in politics and in the summer of 2012 she was elected as a delegate at the Democratic National Convention.  She said she “wanted to be a voice for other people like me who have a severe disability, who are too sick to get out and say we need affordable health care.”  She traveled to the convention with her husband to cheer her party on and share her thoughts on health care. 
Even though Jamie has EB she doesn’t let it stop her from being a singer, song writer, political advocate and talented artist! 
by Sami 

So while some days the internet, Facebook and technology in general can cause a  lot of problems for a lot of people, this is one instance where it helped create a positive event

© 2013 Four Busy Bees and Two Butterflies

Tuesday, April 16, 2013

Garrett's Bears

After Garrett was born we received  a care package in the mail and in that package was a teddy bear.  I didn't give it too much thought about it at the time, but after he died it became one of my most prized possessions.  Even though a teddy bear could never replace a child, it did give something for my empty arms to hold.  I named him my Garrett Bear.

I have always had a desire to do/make something for the families that have lost a child to EB in remembrance of their child.  I have come up with a few things over the years but nothing really stuck until now!

Please take a moment to check out Garrett's Bears!   I hope this will become an on-going successful project! 

Friday, March 22, 2013

Joey's Surgery

Sorry I haven't had time to update.  His surgery went well.  They did NOT need to intubate him after all:) IV sedation was enough and then he pulled his own IV out when they were done:/  We were home by noon!  They dentist had to remove 6 teeth and cleaned the rest.  He doesn't seem to be in too much pain and is eating some but still doesn't like to drink much of anything.  Thank goodness for his g-tube!  Thanks for all your prayer and happy thoughts! 

Tuesday, March 19, 2013

Tid Bits from Today

Joey woke up at 8am very grumpy:(

He and I went to to dollar store to pick out something small to contribute to Gracie's East Egg Hunt in Pre-K tomorrow. 

Joey was very naughty today and had FOUR time-outs in his bed:(  I hope this doesn't continue. 

I did 4 loads of laundry and I am still not done:/

Everything is all packed for Joey's surgery tomorrow: a normal diaper bag, a g-tube supply bag and a wound care supply bag.  You'd think we were going on vacation!  

We had sweet and sour chicken w/ rice and corn for dinner

The girls went to bed late but that happens sometimes especially with the time change. 

It was so warm by mid afternoon (89 degrees) I had to turn the A/C on:(  I don't like having to turn the A/C in March.  But my friends up north keep getting snow, so we'll keep the hot weather even in March:)

I hope to get some sleep tonight.  We have to leave by 5:30am:(

I will update on some point tomorrow after his surgery.  Hopefully it goes well and he can go home the same day!  

Sunday, March 17, 2013

Tid Bits

Some friends started doing blog posts almost daily about random things that happened during their day.  At the risk of being a copier, i thought i'd give it a try but I am not sure I will have time to do daily "Tid Bits" but here goes!

Summer and Joey spent a lot of time playing outside today.

The girls fought and whined A LOT:( 

Joey can turn the bathroom sink on and off by himself:)  He has flooded the bathroom twice this week so far:( 

We are pretty sure Joey is going to be left handed!

Joey will be having dental surgery on Wednesday.  The plan is NOT to be an inpatient but it will depend on how he does during and after surgery with his breathing. 

School picture day is on Tuesday and the girls are excited. 

Its been a rough week in the EB community.  Two brothers from England died 2 days apart from complications from the pneumonia:(  They were almost 4 and almost 2 and had JEB-H.  You can watch a sweet video of them here

Baby Easton is almost 7 months old and is battling bacterial and viral pneumonia too.   His family and the doctors are very worried about him.  If you are on Facebook you can find his support page here

There also a new EB baby here in Florida!  I waiting to get more info on her but she was just born last week.

I will post after Joey's surgery on Wednesday and let you know how it went. 

Sunday, March 10, 2013

Birthday Weekend

 Since Summer and Joey 's birthdays are one day apart we had another joint birthday party this year!  We will probably do it that way every year until Summer starts to complain:) 

We rented a bounce house this year!

Joey LOVES to bounce!

Cake time:)

He was posing for this pictures while eating his cupcake!

Present time...the best part per Summer!

Can you believe she is 7 already???

And he is TWO????

(yes I think they looks alike too!)

Friday, March 8, 2013

Happy Birthday Joey!

Today Joey turns 2 years old!

Here he is when he was just 1 day old

And here he is today!

Fun Facts about Joey:

Weight: 25 pounds
Height: 35-36"

Favorite TV Characters: Elmo, SpongeBob, Mickey Mouse

Favorite Foods: Cheese, yogurt, chips

Favorite Sister: Summer (don't tell the others)

Joey loves to play outside, swing, color, and make lots and lots of messes!  He loves to take a bath and play with bubbles.  He hates to wear socks and takes his blankie everywhere he goes!  He has blonde hair and blue/green/brownish eyes (they seems to change throughout the day!)  He can say over 100 words and can walk up and down steps without help.

For those new to my blog; you can read about his 1st Birthday here ; and his birthday story here

His party is tomorrow and I will post pictures of that hopefully on Sunday!