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Tuesday, December 18, 2012

December 18th

To some people today is just an ordinary day; a week before Christmas.  But for us it's the anniversary of the last time we held our baby boy, Garrett James.  Today it's been 8 years since he took is last breath; 8 years since ours lives were changed forever; 8 years since our hearts were broken.  

In the past 8 years I have learned:

- that time does NOT heal all wounds

- who my true family and friends are

-hearing of the death of another child is incredibly heartbreaking (needless to say this week in particular has been vary hard to comprehend)



Even after 8 years I still remember:

-the exact words from the doctor that he was gone

-the conversations I had with friends and family when I called to tell them the news

-planning his funeral

-all the people who came to his funeral


And ever since that day 8 years ago I /we

- still celebrate his birthday every year

-still wonder what life would be like had he lived

-tear up when I hear/see an emergency vehicle with their lights/sirens on

*******************************************




In loving memory: 
Garrett James
December 6, 2004 ~ December 18, 2004

Thursday, December 6, 2012

8 years later...

Yesterday my status update on Facebook was the following:

"my reality is every parents worst nightmare" 

While it is sad, it is also very true.  And I know too many other parents with the same reality.  No parents wants to celebrate their child's birthday without them.  But today that is what we are doing.

For those that do not know the story 8 years ago today at 12:40pm Garrett James was born.  Born with EB and just a little over a month early he weight in at 5 pounds 13 oz.  Little did we know, his time here on earth would be short; very short.  Just 12 short days later as quickly as he born, he was quickly gone. (for those that don't know or don't remember he died from complications of a blood infection not caught soon enough by the doctors)  If you have never heard his story before, you can find it here.

I have done a blog post on this day for the past 7 years and each time I never know what to say.  There is nothing new to say, no new pictures to post.  But I can tell you that time does not heal all wounds; the pain doesn't go away; it just becomes easier to live with.  I wonder how he would look like today.  Would he have blonde curly hair like Summer and Joey?  What would his favorite subject be in school? Those are questions I live with every day; questions that will never have answers.

After he died I was determined to do something good in his memory to help others so that his death was not in vain.  That is when I started Garrett's House  a web site to educate others about EB; help new EB families so no one else would go thru what we went thru and to promote awareness.  Like many web sites, Garrett's House evolved and is now called In Garrett's Memory

So tonight when everyone gets home from school and work we will eat dinner together, open presents and build our traditional gingerbread house and remember Garrett.  And eat cheesecake; can't forget the cheesecake!  Though his time on Earth was WAY too short, I know the impact he had will last a long time.