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Tuesday, September 18, 2012

Sick again :-(

Joey is sick again:(  Doctor thinks ear infection but he also is really bloated and grunts when he breathes when he is sitting.  The doctors has no idea why.  He breathes fine when he is standing or laying down; his o2 levels are normally most of the time but his heart rate is higher than it should be and he is breathing faster than he should be too.  Could just be EB stuff but he doesn't have the same symptoms as before.  His temp is right around 100 but the doctor doesn't consider that a fever.  Been going on and off from the past 5 weeks. VERY frustrating!!!  If we don't see any improvement over the next 5 days then most likely we will have to take him to the ER.  I doubt we will get anywhere there either but I am tried of being blown off by ALL his doctors.  He is not sleeping well either which means we aren't either.  

Sorry no knew pictures tonight; still need to download off the camera.  But you want you can heard over here and read a blog post I did for the family, friends and followers of baby Easton.

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