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Tuesday, July 17, 2012

Still plugging along....

we are still here..trying to survive the heat and rain that have hit us!  

Sami is back to her old self.  Joey is starting to walk on his own and Summer and Grace are well...just being Summer and Grace!  

Other than that, not much to report on now, so feel free to check out my on-line Avon store!  Sales have started to tapper off so trying to drummer up some business so I can stay open!  ( I have to make a certain amount of sales per month in order to stay an Avon rep)  I am planning a fundraiser in August for an EB organization near and dear to our family! So stay tuned for that:)

You can visit my store here and check out the ANEW products!   Those are very popular among my loyal customers!

Hope everyone is staying cool during this hot, hot summer!


Tuesday, July 10, 2012

16 months old!! (and other news)

its 1:21pm on Tuesday...lets see how long it takes me to type of this update!  lol

Joey is 16 months old now!  He probably weight about the same (22 pounds 31 inches)

Favorite Foods:
Dino Shaped Chicken Nuggets
Whip Cream
Graham crackers

He loves to crawl EVERYWHERE and walking around furniture.  He just started pushing around a shopping cart of the girls'.  But won't walk independently.  Which is fine with me.  Less for him to get into!  But he is also a climber!  If he is on the couch he'll climb on to the arm of the couch and try to climb up the wall:(  

Still having issue with his g-tube leaking.  Nothing we have tried is working other than not feeding him as much thru his tube.  When he crawls it just put so much pressure on his belly, it causes the g-tube site to leak around the edges.  Hopefully once he stops crawling 50 mph 12 hrs a day it will stop leaking so much!  He is done to one nap most days= anywhere from 30 minutes to 3 hrs.  Don't ask about night time sleeping, I know i'll jinx us:)

His skin is about the same; as long as we wrap he is pretty blister free.  

Here he is all wrapped up after a bath.

Sami is recovering well, already back to her old self already planning her birthday party! (Her birthday isn't for another 7 weeks!)  My birthday however is in 34 days....I haven't had a party or gone out for to celebrate in years!  So trying to come up with something to do this yr.  All my local friends are scattered throughout the city (and state) so not sure what will work for everyone. 

Work is same old, same old; getting ready for the back to school season!!!  Avon is going ok.  Been pretty slow this last campaign...hopefully things pick up soon:)  You can always check out my on-line store here!

I think that is about all the news for us!  Hope everyone is doing well!  Thanks for reading:)

p.s its 10:56pm on Tuesday...only took 9 1/2 hrs to write this one!

Monday, July 2, 2012

Update on Sami

Sorry for not doing an update sooner this past weekend was rough with working and dealing with Joey's g-tube issues.   Anyways Sami had her post op appointment today.  Her back is healing nicely.  She is back to her normal self but does have pain from time to time.  She still has to take it easy, no rough activities, no PE class once school starts up again  (she is really upset about that; she just wants to be like everyone else).  Here is a picture of her x-rays.  The x-ray on the right is before surgery and the one on the left is after.   
We go back over Thanksgiving break to check her growth and hopefully schedule the surgery to lengthen her rods over Christmas Break so she doesn't have to miss any school.   Sami want to get her fusion and permanent rods next summer but the doctor would like to wait another 3 yrs.  We'll see how the next surgery goes and go from there.  But I honestly don't think having surgery every 6 months for another three yrs is going to work for any of us, especially Sami.  And that is if her rods don't break or crack which the doctor expects them to do at some point because that is just the way it goes for someone with growing rods.