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Monday, June 25, 2012

surgery update

ok, finally got time to update!

Sami went into surgery at 8am and it took anesthesia about an hr to do their thing and the doctor finally got started at 9am.  The doctor came out at 10:30 and said they were done.  He decided (last Thursday) to do something a little different with Sami's back.  A little background for those new to the situation, last summer she had growing rods placed in her back.  They were special rods that were suppose to slide on their own eliminating the need for surgery every 6 months.  Well the rods did not slide like they were suppose to so the dr had to go in there today and slide them and then lock them in place.  Well last week he decided to modify the rods to make future lenghthenings easier but forgot to mention it to us till after he did it:/.   He cut the rods, added a bracket to both rods and some screws to hold it in place and then he slide the rods about an inch.   We aren't upset by it but some warning would have been nice,.  We were not planning to spend the night.  But because the procedure was a little more involved she lost more blood (400cc) and has a larger incision and is in more pain.  So she is in the PICU on IV pain meds and needs blow by O2 when she sleeps.  She may need some blood depending on how her blood work -that they were suppose to draw at 2pm but haven't yet -looks.  As long as she is doing ok tomorrow she can go home.  She is REALLY, REALLY pissed she has to spend the night.  We weren't planning on this so we didn't pack an overnight bag.  We don't live too far from the hospital but not close enough to run home quick.  She wanted me to stay with her tonight so Joe went home with the other 3.

So far I have managed to piss off the attending because Sami refuses to take pain meds (besides Ibuprofen) by mouth.  And i won't force her to.  The nurse hasn't checked on us since we got up here.  She is doing ok pain wise.  She's been out of bed once to pee.  Her skin seems to be ok.  Some issues with the staff not listening to my instructions about the blood pressure cuff and sticky things- her EB is pretty mild now so its hard to make them understand what is possible if things aren't done correctly. 

I will update later. 

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