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Tuesday, October 25, 2011

EB Awareness Week- Day 2

Its late and I am doing 7 other things at once, so here are some quick facts about EB you may or may not know:

*In the US, 1 out of 50, 000 babies are born with EB.  Worldwide that number drops to 1 out of 17,000.

*Approximately 1/3 of those babies will not live to see their first birthday.  

*Depending on which study you read, 1 out of every 227-352 people are carries of an EB gene (I am pretty sure this includes people who have EB)

*Simplex is the most common form of EB

And that concludes your fun (or not so fun) facts about EB!

Here is a pictures of Joey feeding (yes at 7 months) himself mashed potatoes:) 

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