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Thursday, June 23, 2011

GI Dr Apt

Joey had a follow up with the GI doctor today.  Despite being the FIRST appointment of the day we had to wait 20 minutes to see the nurse practitioner and then it took her 20 minutes to update the doctor and come back into see is.  I had to take the girls with me, 1 out of 3 behaved:(

Weight: 11 pounds 8 oz as is (11 pounds w/o bandages, etc...)
Length: 22 1/4 inches 

They upped his reflux meds as he is still having issues when he eats via g-tube and screams almost for every feeding.  We go back in August (after school starts, yea!!!) for another follow up and then he'll be scheduled for another swallow study and digestion rate test (to see how fast his stomach empties and to see if he is truly refluxing when he is g-tube fed.  They suggested we discontinue feeding therapy at this point since he has so many blisters in his mouth and its hard to eat by bottle and no amount of therapy will change that.  He seems to be having some swallowing issues from time to time, but with the oral blisters its hard to do exercises to help improve that at this point.  So that will be one less things on the schedule each week!  

So far he has NO appointments for July.  YIPPIE!!!   Just Sami and I so far have appointments in July.

Not much else going on here.  The weather is still VERY HOT.  The A/C has a hard time keeping up most days.  

Joe's leg still isn't any better and is waiting on an appointment for a vascular ultrasound to check for blood clots:(  Prayer for that are appreciated.  

Here is a picture of Joey with his new buddy who is almost a big as he is:)

1 comment:

  1. Hi Sara: Thanks for the update. I really don't know how you do it all. I get exhausted just reading about doctor appointments, plus taking care of Joey and the girls. You are amazing my friend.
    Praying for Joe's leg and of course for Joey. I love the picture, he is adorable. Take care and enjoy the summer, even with a little girl with a big attitude. Love you guys. Love Leah's Nana