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Monday, May 24, 2010

Conversation with Gracie........

 

a recent conversation with Grace:

Gracie: mommy!!!!!!!!!!!!!!!

Me: what?

Gracie: me sink!!!!!!!!!

Me: you what? oh you stink?

Gracie (holding her nose): yea, me butt sinky...ewwwwwwwwwwww

 

the joys of kids still in diapers!  

Sunday, May 23, 2010

The circle of life

This weekend has been full of tears- both of joy and heartache. 

For many months the mother of a good friend of mine has been battling lung cancer.  They knew pretty early on that is was one battle she probably wouldn't win, but she was going down without a fight and what a fight it was!  She lived longer than anyone expected.  Then Friday the end had come and she is no longer in pain (RIP Carole!)  In high school Stacy and I were good friends and I spent a lot of time at her house; many sleep overs; many dinners with the family.  Her parents were very nice and made me feel welcome all the time; especially when things were not so good at home.  I am sure I never told them that; I wished I had. 

A couple of hours after that I learned another friend of mine (from the same group of friends) was in the hospital about to give birth to her 3rd child.  How ironic that those two events happen on the same day within hours of each other??  No other way than to describe it as the circle of life....

Then went I didn't think I had anymore tears left, I received another heartbreaking email.  An EB family I have been communicating with for the past couple of months lost their 3 month old daughter this morning:(  This was a death I knew was coming; she had severe EB and wasn't doing well.  The doctors had given her a week to a month- she made it 9 days.  But even though this was a call (email) I knew would be coming it still doesn't make it any easier. 

Unfortunately due to distance and finances I will not be able to attend either funeral:(  And I feel really bad about that.  But hey I am only 1 person and can only be once place at a time.  I guess I just need to clone myself, I know a lot of people would be happy; my kids and my job! 

Thursday, May 20, 2010

Doctor Appointments

Sami's apt Monday went well (other than hitting her knee in the office and almost ended up in the ER for x-rays!)  But her new doctor is really nice and is willing to take her on as a very complex patient! 

Tuesday was my barium swallow and the stuff tasted YUCKY times a million!!!  I almost threw it up it was that bad.  No wonder Sami refused to drink it when she had her's done a few years ago!  They told me my doctor would have the results by Monday. 

Today the phone rang and it was my doctors office!  They got the results already and everything looks great!  Which is good, but still doesn't explain why i am having these current issues.  My best guess is its just allergies and I can't afford to go see another specialist right now so i'll just wait and see how things go.  Allergy medicine seems to be helping.  But I can also tell some of it is stress related and most of that isn't going away where anytime soon. 
But at least its not EB related or something worse! 

Oh and Grace has a new word:

TARGET:-) 

i am so proud!  Of course Sami and Summer can say Target too but not at the age of 2 1/2.  It's amazing, 6 months ago Grace maybe said 10 words; now she probably says close to 50-60, maybe even more.   Knowing me, i'll probably try to count them all one of these days!

Sunday, May 16, 2010

Busy Week Ahead

Long time now blog, I know.  I do wish i had more time to blog, just most days I have more things to do than hours in the day!

This week is a busy week for us!  Monday Sami had an apt with her new pediatrician (her old one who she had seen since birth closed)  I have to take all 3 kids with me so hopefully it will go better than I am expecting it to.

Finally after 2 months of throat issues I will be having a barium swallow done on Tuesday to see if there is anything in there we need to be concerned about.  I am hoping its just EB related and nothing more serious, but at this point I just want some answers! 

Sami only has a few more weeks of school left and then we have have a THIRD GRADER!  Goodness where did the time go?????

Starting next weekend I will be working almost full time now.  Still at the same place, i'll just be doing two jobs there instead of one.    It also means I am back on nights and weekends:(  i had no choice in the matter; it was either switch back or find a new job all together.  After 15 years with the same company, I really don't want to start over somewhere else.  It looks like a have a baby sitter lined up for the summer but she can't start till July, so hopefully this nights thing will just be for a month or so. 

Well that's about it for now.  i'll update after everyone apt this week later in the week. 

Monday, May 3, 2010

New Poll!

right above this post is a poll I am conducting!  Please take a minute and cast your vote.  I am curious to see how average (or not so average!) our meals each week are!