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Sunday, January 3, 2010

Baby Leah

December was a bad month for those with Epidermolysis Bullosa (EB).  I learned on Thursday, that Leah got her wings.  She was 10 months old and had Junctional EB.  Her death was quite a surprise.  She had just had g-tube and dental surgery the day before and was doing well after wards.  But apparently her little heart could take it anymore and it stopped working early Thursday morning.  She was the 3rd one that I knew of who got their wings in December. 

You can visit her blog here:


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