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Sunday, December 27, 2009

A weekend of some first's

Over this past weekend I drove to another state by myself for the first time which took 5 1/2 hours and that was the longest I have ever driven!  It was also the first time I showed up at the WRONG funeral home for a funeral:(  It wasn't however, the first time I had been to a funeral for someone who had EB; it wasn't even the 2nd time.  Counting Garrett's that was my 4th EB funeral.  A little boy named Wesley lost his battle against Junctional EB on Christmas Eve morning.  He was only 6 years old.  But he was a brave little boy who always had a smile on his face:)  He was a HUGE fan of superman and I know that he is flying high up in the sky just like superman looking out for all of us!


R.I.P. little guy!

Friday, December 18, 2009

Hard to believe its been 5 years...



Remembering today and always...






Garrett Denslaw

December 6, 2004~ December 18, 2004

due to complications of Epidermolysis Bullosa Simplex- Dowling Meara

















“It has been said, 'time heals all wounds.' I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens, but it is never gone.” ~Rose F. Kennedy



Tuesday, December 15, 2009

Our Christmas Card

While I did mail out some Christmas Cards this year, not near as many as I would have liked too.  We are blessed with so many family and friends and as much as we love them all; it would cost a small fortune to mail cards to everyone!

So here you go, our family Christmas Cards for this year


Garrett's Birthday Celebration








Building our Gingerbread Village to celebrates Garrett's birthday.  Afterward we has strawberry cheesecake:)

 

  



  

Happy Grace!






 


Grace's House




 


mommy's house





Sami's house




 


Summer's house








 

the entire village



Tuesday, December 1, 2009

Wake me up when December Ends...............

Yes, I know the title of the song is actually 'Wake Me Up When September Ends', but you could replace September with December and you can't really tell!

Today is the first day of December and the start of a very difficult month for me.  December is full of birthday's, holiday's, anniversaries and other similar events.  Some of them good, some not so good.

These are in no particular order:

December 30th- my nieces birthday!  She'll be 19 which makes me feel old since I have known here since she was 8!

December 5th is my mother in laws birthday.


December 10th marks 15 years of meeting one my good friends. Meeting them changed my life in ways I can't even put into words.  The decisions, choices and events that followed in the years to come made me who I am today and I will be forever great full.  However, as the years go by, things change, people change and friendships change...sometimes not always for the better.

December 11th is the 11th year anniversary of Joe and I's first (blind) date- which consisted of dinner (at Chilli's) and a movie (the first Star Trek Next Generation Movie).

December 9th is Joe's birthday and our wedding anniversary.  It'll be 9 years this year!  It was a cold snowy day that day and our honeymoon was one never to be forgotten.  We drove through a blizzard to get to Chicago and got into two car accidents and did $3000 damage to my brand new car. (what a way to start a marriage huh?)  We kept going on, but most of Chicago was shut down due to the weather. We should have gone with plan A and went to Jamaica!  It would have been warmer and probably cheaper in the long run!

December 25th is of course Christmas.  Christmas, at one time, was my favorite holiday, till 2004 then I just as soon of skipped over the month of December and head right into January. 


December 6th is the day Garrett was born.  One of the happiest and surprising days of my life.  I said he was the best early Christmas present we could get. Sadly that joy only lasted 12 days.

December 18th is the day Garrett died; the worst day of my life. 

December 22nd was the date of his funeral, just 3 days before Christmas.  I still remember his funeral like it was yesterday.  I remember every single person that was there and those that should have been there, but weren't.  I remember the outfit Sami wore as she bounced around the room laughing and singing, not realizing what was going on.  I remember the wonderful service, our good friend Diane did; I remember the music that was played: Go Rest High on the Mountain by Vince Gill and Baby Mine by Bette Midler.

It will be 5 years this year and have a feeling its going to be the hardest year yet.  I have friends with kids the exact same age and seeing them makes me wonder what Garrett would look like today.  I have been tempted to get age progression software to take Garrett's picture and progress it to 5 years, but I have a feeling it will only make the pain worse.

Every year on his birthday we make a ginger bread house. This year I got a ginger bread village with 5 small building- one for each of us so no one has to share and hopefully it'll cut down on the fighting between the girls!

I also never work on that day or the 18th either.  I was tempted this year since his birthday falls on a Sunday and I only work 4am-9am on Sunday's so i would be home most of the day anyways, but I am afraid if I did it this year I might continue to in the years to come and I don't want to break that tradition.  We also give the girls one present and say they are from Garrett.  I know I won't always be able to tell them that, but it works for now.

We don't really do much on the 18th; the girls don't really understand what that day is about.  But I'd like to start a tradition for that day.  Though I am not sure what at this point.  Its a Friday this year so Sami will be at school for most of the day.

I'll leave you with the lyrics for Green Day's song- 'Wake me up when September Ends' which inspired this post.


Wake me up when September End

by Green Day


Summer has come and passed
The innocent can never last
wake me up when September ends

like my fathers come to pass
seven years has gone so fast
wake me up when September ends

here comes the rain again
falling from the stars
drenched in my pain again
becoming who we are

as my memory rests
but never forgets what I lost
wake me up when September ends

summer has come and passed
the innocent can never last
wake me up when September ends

ring out the bells again
like we did when spring began
wake me up when September ends

here comes the rain again
falling from the stars
drenched in my pain again
becoming who we are

as my memory rests
but never forgets what I lost
wake me up when September ends

Summer has come and passed
The innocent can never last
wake me up when September ends

like my father's come to pass
twenty years has gone so fast
wake me up when September ends
wake me up when September ends
wake me up when September ends