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Monday, October 26, 2009

National EB Awareness Week


 In honor of National EB Awareness week, I would like to pay tribute to all those infants, children and adults who lost their brave battle to EB and are now flying high in the sky with the butterflies!  Below is a list of EB Angels I either know, have talked (or emailed) to their parents, and  came across on line through the years.  The list was MUCH longer than I thought (aprox. 226 names) and it has taken me almost 2 days to write this post!


 In loving memory of......



Braiden B.
Craig W.
Emberly P.
Gabriel V.
Gage M.
Landon S.
Lee L.
Lucy N.
Addison J.
Alex H.
Brandy K.
Brida H.
Bursa
Derek J.
Devin R.
Emma M.
Jacob J.
Jacob L.
James U.
Kara B.
Kaylee
Le Andre S.
Matthew
Megan H.
Mia H.
Owen D.
Ryland B.
Sarah M.
Andrew C.
Angel J.
Anthony M.
Caleb
Caleb E.
Corey C.
Emmaylou C.
Estefania
Grant T.
James L.
Jaylin P.
Justin C.
Kristin
Luis C.
Macey-Kate M.
Max B.
Nathaniel M.
Nichols D.
Robert F.
Sania A.
Xantha M.
Zach O.
Anthony U.
Austin J.
Debbie
Eric H.
Gavin F.
Joseph M.
Kate D.
Kelly D.
Kermitt T.
Maximus B.
Nicholas M.
Noel M.
Tille
Alma E.
Angelica T.
Elliott S.
Erum K.
Ethan
Josh
Justin L.
Kael F.
Kevin K.
Malachi B.
Kurt M.
Margaret O.
Michael T.
Montanna R.
Sadie H.
Taliah
Anthony T.
Courtney A.
Baby Girl R.
Katie
Kayla
Rebecca S.
Andrew A.
Andy B.
Baby Boy H.
Brittany W.
Eduardo P.
Brittany H.
Katia S.
Kobe T.
Laney H.
Marianda M.
Brittany B.
Daniel S.
Dylan
Emma P.
Jamia F.
Kelly M.
Nyanjau M.
Quentin
Sarah C.
Sophia L.
Thomas S.
Tricia H.
Witt
Aaron F.
Adrain O.
Amber F.
Brogan A.
Donte B.
Ed K.
Baby Girl F.
Jack C.
Justin C.
Kiara F.
Nicholas S.
Olivia H.
Carlos F.
Caylin S.
Kaitlin P.
Kelly D.
Lisa V.
Travis S.
Trevor S.
Kenneth D.
Dana M.
Courntey S.
Crystal G.
Jaslyn
Madeline F.
Mallory H.
Michael S.
Ryan M.
Samantha
Sara N.
Shana
Susie T.
Taylor W.
Tony P.
Coleby M.
Jamie J.
Jennifer J.
Logan B.
Matthew A.
April S.
Cynthia R.
Landon T.
Andrew G.
Gary G.
Adam S.
Alex M.
Matt
Allison S.
Alex Z.
Ben G.
Gus David M.
Susan P.
Tyler J.
Joyce S.
Christine A.
Lauren J.
Ryan M.
Joan B.
Kalie D.
Natalie D.
Paul D.
Chuck A.
Jennifer J.
Baby Boy
Tyshera W.
Adam W.
John R.
Michael H.
Adrian I.
Simon E.
Debra H.
Irene C.
Christina C.
Avin B.
Denise G.
Jeffery G.
Michelle C.
Sean P.
Caroline F.
Mike
Jay
Katie
Kerry W.
Michael W.









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