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Wednesday, March 25, 2009

Random pictures for this month

Grace peeking through the slates on their swing set

Summer learning to blow bubbles

a rare picture of Sami willing to let me take her picture

Grace figuring out water comes out of the hose

Summer being....well....Summer!

My dirt devil Kone I got at Big Lots for $12!!!

Summer's new car shoes I got at Target on Clearance for $3.00!!

Grace watching the girls blow bubbles

Summer loves her bubbles!

Bubbles blowing in the wind

Home Made Bubbles

My kids LOVE bubbles, but spill them a lot and the cost adds up to replace them. So I finally found a home made recipe that works!

Cyndi's Bubble Recipes
from the Nathan's Wish web site

1/2 cup of dishwashing liquid (Dawn or Joy)
2 cups of water
2 teaspoons of sugar
Cyndi suggests adding a dab of food coloring for colorful bubbles. Mix the solution and place in a shallow pan (or refill your old bubble containers).
NOTE: More recipes and fun with bubbles are available at the website link above.

Thursday, March 12, 2009


We are sick again (except Sami) Grace and Summer have sinus infections and Grace has an ear infection. Joe and I have the stupid viral chest cold going around and around and around. I have been sick for 2 weeks, but he's been sick for 2 months.

I hope we all get better and stay better soon. I get coughing so much I can't breath! It's annoying!

Other than that, not much going on, just TONS of doctor, dentist and vet ( for the cats) this week! Today is the busiest day of the week! Is it Friday yet????????

Tuesday, March 3, 2009

Publis vs Private

I keep going back and forth about making this blog public or private. There is a certain person using this site to obtain info about my life and my family. I won't name them, but they know who they are and some of you do as well. But you know what, I could care less anymore. Life is too short for these games this person continues to play.

So once again, my blog is public!

My heart is broken

I'll start with the beginning of the story for those who are hearing about this for the first time.
7 months ago a baby boy was born at the same hospital that Sami and Garrett were and he was born with EB. The first time I saw a picture of him, I said 'he has simplex dowling meara!'. Everyone thought I was nuts because of how severe he was. But the biopsy came back as simplex dowling meara. I met the family when he was 2 weeks old and we have been friends every since. I saw them about once a month. They met Sami, which gave them great hope for the future. EB wise he was very similar to Sami and Garrett. I felt such a connection to them.

Like many babies with older siblings, he caught every cold his brothers brought home from school. And they always settled in his chest. Even with breathing treatments and steroids, it was difficult to reduce the mucus and inflammation in his lungs. He had frequently breathing difficulties that landed him in the ER. He never had any signs of upper airway issues and nothing that indicated that it was EB related. Two weeks ago tomorrow he stopped breathing for a third time. This time is heart stopped as well. It took 15 minutes to bring him back. He had been on a ventilator ever since. Yesterday he had an MRI done which shown significant brain damage from being without oxygen for so long.

After the MRI he was taken off the ventilator, breathed on this own for 11 hours, and died at 6:08 this morning.

I loved him as if he was mine and my heart aches like when Garrett died....